VOLUME X ISSUE 4 SUMMER 2002
From the Executive Director Mary Margaret Moore
I want to thank all the consumers, staff, volunteers, board members, supporters, contributors, and funders who have worked with us during this past fiscal year. Of particular note are the Board members of ILCNSCA. They have assisted the Center to define a path under a Strategic Plan. Sheila Casey, Board President, has taken on the leadership role well and provided direction to a group of concerned Board members interested in insuring that ILCNSCA continues to grow and develop as the voice for all for persons with disabilities on the North Shore and Cape Ann.
The Legislative Breakfast, described in the next column, was very successful this year. At a new site, the Hawthorne Hotel in Salem, this important dialogue between elected officials and the consumers, staff, and supporters of ILCNSCA, was organized by Shawn McDuff, Director of Access and Advocacy, and Jean Deschene and John Litchman, Board members. Their efforts resulted in a jam-packed morning of over 100 participants. Staff and Board members and volunteers insured all went smoothly.
Our first Annual Walk- A-Thon, conceived by Debbie Wilde, Chair, Financial Development Committee, and Kathy O'Brien, Associate Director, was a massive undertaking. Although the initial event day was one of hail, high winds, slush, and torrential rains, the rescheduled event on June 8 at Winter Island was successful. The Center made almost $2000. The list of donors for the Raffle items was varied: PG&E; National Energy Group, Stop & Shop, Gloucester House Restaurant, Hollywood Hits, Brothers Restaurant, Beverly Marblehead Savings Bank, Hawthorne Hotel Nathaniel's Restaurant, House of 7 Gables, Catfish Grille Gloucester, Middleton Golf Course, Salem Five, Robin McClone, Reiki Master, Weathervane Tavern, Belmont Springs, Shaws, Salem Wax Museum, Meletharb HomeMade Ice Cream, North Shore Music Theatre, Debbie Wilde Baskets and TV, Trader Joes, Beverly Depot. All of the wonderful items were appreciated by those who won them. The shopping at Simons Mall certificates, restaurant certificates, and recreational items have been put to good use, according to our sources. All are enjoying their raffle winnings.
ILCNSCA also wants to thank the Walker Supporters who obtained pledges. Charlotte and Donna Garber, Ayser Elamin, Peter Morfis, Marianne Thibideau, KathyO'Brien and Pam Correnti, Pat O'Brien, Shawn McDuff and Maria, Anna Tarquinio, Tiffany Park, Donna Rourke, Garsun Dysart, Phyllis M. Silva, Arlene O' Sullivan and Carol Suleski, Arthur J. Gorrasi, Jr., Joyce Greer, Diane Bossi, Natalie O'Neill, Mike Maszuriewicz, Karen Ames, Beverly Christo, Marilyn McNally, Carrie Vargas, Sheila Casey, and Marcia Brennan. Of special note is the Walker Supporter who brought in the most pledges, Vasilka Nicolova. She has received the donated pair of tickets to the production of Footloose at the North Shore Music Theatre. Thank you Vasilka and all of the Walker Supporters! I also want to thank our elected state and federal legislators.
ILCNSCA is primarily funded by the state through revenues allocated by the legislature to Mass. Rehabilitation Commission for independent living services. This state funding is a mandatory match for the federal funding by Congress for all independent living centers nationally which meet the federal standards and assurances. Congress assigns the federal funds to the Department of Education, Rehabilitation Services Administration who allocates the resources for Massachusetts independent living centers to the state via the Massachusetts Rehabilitation Commission. Currently ILCNSCA receives most of its funding from state and federal independent living center allocations. Without the continued acknowledgement by our state and federal elected representatives that independent living is important and ILCNSCA is meeting the standards and assurances of a viable independent living center we would not continue to exist. Particularly during this time of economic uncertainty and decreased tax revenues I thank Senator Berry and Representative Ruane and Senator Tarr, Representative Verga, Representative Fennell, Representative Speliotis, Representataive Petersen, Representative Cahill, Representative Falzone, Representative Stanley, Representative Falzone, Representative Hill, Representative Slattery, Representative McGee for their efforts to manage the state budget and continue to fund independent living services for persons with disabilities. Together we will succeed.
Legislative Breakfast 2002
ILCNSCA held its Fifteenth Annual Legislative Breakfast on Friday, April 12, 2002 at the Hawthorne Hotel in Salem. The theme this year is "In the current climate, how are you, our legislators, safeguarding and expanding services and funds for Persons with Disabilities, especially in light of the Olmstead decision?" Our legislative Co-hosts this year were State Representative Michael Ruane (Salem) and State Senator Frederick Berry (Peabody/Salem). Other legislators who attended were: Congressman John Tierney, pending unexpected duties in Washington D.C.; State Senators Bruce Tarr (Gloucester) and Thomas McGee (Lynn); State Representatives Anthony Verga (Gloucester) and Robert Fennell (Lynn); and Mayor Edward Clancy (Lynn). Bill Henning, Executive Director of the Cape Organization for the Rights of the Disabled and member of the MA Olmstead Committee spoke about the preparation of the State Olmstead plan, which is expected to be finalized by the fall of 2002. Charlie Carr, Executive Director of the Northeast Independent Living Program and also a key member of the MA Olmstead Committee discussed the importance of advocacy and how the Olmstead decision will impact the disability community. ILCNSCA Board legislative breakfast committee member Jean Deschene read a written speech by Maria Cervone, a disabled woman living in Lynn who recently moved from a nursing home to the community utilizing independent living services from ILCNSCA.
ILCNSCA presented awards to a local employer of the year, to an advocate of the year, to a youth leader and for lifelong commitment to disability rights advocacy. The 2002 Distinguished Employer of the Year Award recipient was City of Peabody's Police Department. The Police Department made accommodations for George Butts, a disabled employee, to make his work site accessible and enable him to carry out his job duties. The Police Department also obtained donations to assist George to purchase an electric wheelchair to improve his mobility at work and in the community.
The 2002 Advocate of the Year Award was given to State Representative J. Michael Ruane of Salem, MA. Representative Ruane was awarded in recognition of his distinguished career as an elected official, as an advocate for persons with disabilities and as a family man. Recently, he filed the House Bill# 4576, the Insurance Parity for Prosthetic Device Bill along with support from ILCNSCA.
The 2002 Youth Leadership Award was presented to Sarah MacIsaac of Lynn. Sarah, a young disabled woman with leadership potential, is furthering her education at North Shore Community College and is involved as a volunteer with ILCNSCA's Restaurant Accessibility Survey Project and Community Access Advocacy Team to advocate in the community for accessibility and for access to programs and services for people with disabilities. She attended a Community Access Monitor training in March sponsored by ILCNSCA and will be using her skills to conduct accessibility surveys. Sarah is also actively involved with Partners for Youth with Disabilities as a Mentor.
Margo Bane of Salem received the 2002 Leavitt Award for Lifetime Achievement. Margo is a founder of the Independent Living Center of the North Shore and Cape Ann, Inc. and served on ILCNSCA's Board of Directors in the early '90s. In the late '80s, Margo was involved with North Shore Transit Inc. whose advocacy assisted in bringing the MBTA The "Ride" program to the North Shore area. Margo received a Bachelors degree in General Studies from Salem State College and volunteered for the Salem Boys and Girls Club for many years.
The North Shore Self Help Association, who founded ILCNSCA, made a special presentation to ILCNSCA of a $15,000 endowment. ILCNSCA founders Gil Adrien and Joan Nielson made the exciting presentation that did end on a somber note as Gil Adrien stepped down as President of the North Shore Self Help Group after many years of dedication and advocacy. These funds are for persons with mobility disabilities who are starting employment or vocational training and need transportation "T" passes for the first month or for a new work outfit or uniform. Call the Center if you are interested in this special fund. The 2002 Legislative Breakfast gave all a chance to hear the triumphs and needs of living independently and the legislative challenges still facing all of us. Together we will be heard!
Introducing Peer Advocate, Zoyla Galice
Hi. My name is Zoyla Galice. Recently I joined the ILCNSCA team as a Peer Advocate, developing a specialty in how to apply for, search for and obtain affordable, accessible, available housing. I also am developing expertise in the rights of persons with disabilities who are immigrants, like myself, to receive certain benefits. I am bilingual, Spanish is my primary language and English is my second language. My educational background is in teaching. Being a Peer Advocate is a new challenge and one that gives me the opportunity to share my experiences as a person with a disability with you all. I am very pleased to work with ILCNSCA and I thank you for having an opportunity to introduce myself. I look forward to working with you in the future.
Hola. Mi nombre es Zoyla N Galice. Recientemente empeze a formar parte de equipo de trabajo de ILCNSCA, en la posicion de Peer Advocate, desarrollando una especialidad en como buscar, solicitar y obtener una vivienda economica, accesible y disponible. Tambien estoy desarrollando experiencia en asuntos de emigration, en relacion a los derechos de los emigrantes que tienen incapacidades, y como obtener ciertos beneficios. Soy bilingue, Espanol es mi lengua primaria e Ingles es mi Segunda lengua. Mi experiencia trabajo ha sido mayormente en el area de la ensenanza. Como Peer Advocate estoy experimentando una nueva area de trabajo que me da la oportunidad como persona incapacitada, decompartir mis experiencias con todos ustedes. Me siento muy a gusto de trabajar con ILCNSCA, gracias por la oportunidad de hacer esta presentacion possible. Espero poder trabajar con ustedes en el futuro.
The Northeast Consumer Advisory Council Wants You! Join And Make A Difference
By Ayser Elamin and Kathy Mooney
The Northeast Consumer Advisory Council is an advocacy association that advocates on behalf of the disabled community on the North Shore, Cape Ann, and surrounding area. Members include present and past consumers of the Massachusetts Rehabilitation Commission, human service providers and other representatives of people with disabilities. The Northeast Consumer Advisory Council was formed in the early eighties as a group that advises MRC. The Northeast Consumer Advisory Council is a forum where disabled people can be activists on their own behalf. Their input can improve services and other vocational practices of MRC. The group seeks to empower consumers by increasing their role in the formation and implementation of MRC policies. Kathy Mooney of Salem has been a member of the Northeast Consumer Advisory Council for almost twenty years. Kathy was first introduced to the Northeast Consumer Advisory Council as a member of the Independent Living Center of NSCA. Currently she is one of three co-chairs of Northeast Consumer Advisory Council. When asked why she thinks disabled people and others would benefit from joining Northeast Consumer Advisory Council, Kathy said, "We share information and help consumers with issues regarding rehabilitation." She said the Northeast Consumer Advisory Council functions partly as a "support group" as members help each other. But a larger role is that the Northeast Consumer Advisory Council advocates on "behalf of the disabled community as a whole." "We advise the Commission on issues of concern to consumers, providers and the disability community." Members have advised MRC on issues such as transportation needs of the disabled, budget concerns, how to improve MRC programs and rights and needs of consumers. Kathy encourages people to become involved so they too can have a voice. "We meet (at least bimonthly), on the first Tuesday of the month. We invite you to join us!" The next meeting will be on Tuesday, August 6, 2002 at the MRC-Somerville Office. To find out more or to obtain transportation, call Ayser Elamin of MRC-Salem at (978) 745-8085 X115. For questions about the Northeast Consumer Advisory Council call Kathy Mooney (978) 744-6588.
Special Time Limited Promotion!
For each pre-paid 2003 Entertainment Book get an 2002 Entertainment Book for FREE! The Entertainment Book is packed with hundreds of two-for-one offers and 50% discounts on goods and services for almost everything you like to do or need to do -dining, travel, shopping, movies, theater, sports, auto repair and more. It's your ticket to save money now and next year. To take advantage of this special time limited promotion you must pre-pay for your 2003 Entertainment Book by July 31, 2002, when we receive your payment you can pick up your free 2002 Entertainment Book (good until Nov. 1, 2002) at the Center - there is no limit to how many books you purchase! The 2003 Entertainment Book costs $20.00and the coupons are good from November 1,2002 through October 31, 2003. For additional information or to purchase a book call (978) 741-0077 v/tty or stop by the Center.
If You Are A SSI/SSDI Recipients, You Can Benefit From Project "IMPACT"
As a result of the Ticket to Work and Work Incentive Improvement Act of 1999 (TTWIIA), the Massachusetts Rehabilitation Commission (MRC) has been awarded a grant through the Social Security Administration. The grant has been named "Individual Members Planning and Assessing Choices Together" or Project "IMPACT". This grant is administered through the Statewide Employment Services Department (SES) of MRC. If you are an SSI or SSDI recipient who would like to know the effect additional income from employment would have on your SSI or SSDI benefits, contact ILCNSCA so we can develop a referral for you to this project. The main objective of this service is to provide benefits planning, assistance and outreach for persons with disabilities who are interested in working or returning to work. In addition to information regarding the effect of employment income on SSI and/or SSDI, you will be able to receive individualized information on Social Security Work Incentives, Public Health Insurance, Transitional Assistance to Families With Dependent Children (TAFDC), and Federal and State Housing Programs that may also be affected by employment income. For more information and/or to initiate a referral call Jeanne Lyons, Peer Advocate, or your ILCNSCA Peer Advocate at (978) 741-0077 v/tty. or send us an email to firstname.lastname@example.org with Project Impact in the subject line. Information is power, particularly when one has to manage the rules of government financed and bureaucratically controlled survival supports. This service may help you.
Fantasy Island Luncheon
On Saturday, May 11, 2002 from 12:00 until 2:00 PM, the ILCNSCA sponsored a special luncheon at Fantasy Island Restaurant, Loring Avenue, Salem. Ten participants enjoyed a delicious combination lunch and a chance to make new friends. The staff at Fantasy Island was courteous and helpful to all of the ILCNSCA group participants. It was an enjoyable experience for all who attended. This event was partially supported by a grant from the Clipper Ship Foundation to the ILCNSCA. We always enjoy the service, accessible atmosphere and quality food at the Fantasy Island. Keep a look out for our next luncheon there, probably late Fall, early winter.
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Access Art, By Art Daignault
ILCNSCA TOWN OF BROOKLINE VS. U.S. DEPARTMENT OF JUSTICE - In August 2001, the Town of Brookline signed an agreement with the U.S. Department of Justice that was the result of a complaint being filed under Title II of the Americans with Disabilities Act (ADA). It alleged that "the Town failed to have a transition plan and failed to provide program access in compliance with the provisions of the ADA." Title II of the ADA requires that Municipalities with 50 or more employees have a written transition plan. The Municipalities were to have been in compliance by July 26, 1992 with all structural changes to be completed by January 26, 1995. Ten years later, there are Municipalities that have not completed this requirement. The Municipality's transition plan consists of designating an employee to coordinate ADA compliance, provide notice of the ADA requirements, establish a grievance procedure, conduct a self-evaluation, and develop a transition plan when structural changes need to be made in order for an existing building to become accessible for programs, services, and activities. Also, Title II requires that people with disabilities participate by providing input into the self-evaluation process and in developing a transition plan by submitting comments. It is important that people with disabilities advocate for their Municipality to complete this requirement, so that accessibility will be ensured in all Municipal facilities that offer programs, services and activities to all members of the community. If you would like to work with the ILCNSCA Community Access Advocacy Committee to monitor status of ADA transition plans in the 20 cities and towns of our service area please contact Art Daignault or Shawn McDuff at 978-741-0077 v/tty.
UPDATE ON TALKING ATM MACHINES - In the spring newsletter, Volume X Issue 3, we informed our readers that Fleet Bank had installed talking ATM machines. You can log onto their website at www.fleet.com or by calling Customer Service at (800) 841-4000 for the nearest location of Fleet's talking ATM machines. We also mentioned that Beverly National Bank was in the testing stages. By the start of the summer they are hoping to have talking ATM machines at their newest branches, the Out-Patient Department of Beverly Hospital on Herrick Street in Beverly and the Burger King Restaurant rest stop on Route 128, just after exit 19 (Brimbal Avenue) on the north bound side in Beverly. Now we would like to inform you that Banknorth of Portland, Maine, which bought Ipswich Bank in March, 2002, will be installing talking ATM machines during this summer and fall in Ipswich, Beverly, Salem, and Marblehead. According to the April 18, 2002 edition of the "Salem Evening News," Banknorth settled with the National Federation of the Blind (NFB) in Burlington,Vermont, who had filed a complaint against four banks in Vermont with the Vermont Human Rights Commission. The agreement calls for the installation of the talking ATM machines at more than 400 ATM locations. The first ones will be in Burlington, Vermont, then the rest of the state by the end of 2002. The Independent Living Center of the North Shore & Cape Ann, Inc. applauds the efforts of those that filed against Banknorth to insure that people with disabilities live as independently as possible in their communities. Together we can make the community accessible. ILCNSCA is continuing to contact other banks on the North Shore and Cape Ann on their status with talking ATM machines and will keep you posted.
RASP UPDATE - On May 7, 2002, the Restaurant Accessibility Survey Project (RASP) held its third group meeting of restaurant surveyors. The purpose of RASP is to evaluate restaurants in the Independent Living Center of the North Shore & Cape Ann's (ILCNSCA) service area for accessibility. This project was made possible through a grant from the North Shore Self-Help Association, who founded the ILCNSCA. The restaurants expected to be surveyed during the first two weeks of June include the Outback Restaurant and TGI Friday's in Peabody, Sylvan St. Grill in Danvers, Salem Beer Works in Salem and the Hawthorne-by-the-Sea in Swampscott. The restaurants are surveyed and rated for accessibility in the following categories: external access, entry/exit, internal access, restrooms, service, and alternate means of communication. Each restaurant is rated on a scale of 1 to 6, based on accessibility in those categories. The results of these surveys will appear in the next issue of "Independent Times". The ILCNSCA encourages people with disabilities to become RASP volunteer surveyors in order to make their community more accessible. To join RASP, contact Art Daignault at (978) 741-0077 x 16 (v/tty) or by e-mail at Adaignault@ilcnsca.org. His schedule is Tuesday - Thursday, 9-4 and Friday, 9-3.
Health And Safety Workshop
On Tuesday, May 14, 2002 The Independent Living Center of the North Shore and Cape Ann, Inc. presented a Health and Safety Workshop with "When Seconds Count" on recognizing medical emergencies. Shawn Lerner, from "When Seconds Count", conducted an informative workshop that dealt with issues such as burns, falls, stroke, poisoning, and choking. He also discussed what it means to have a health care proxy and how one can be obtained. The participants of the workshop had the opportunity to look at different first aid supplies and to find out which supplies are the most important to keep in your household.
National Trails Day
By Jamie Flavin
On Saturday June 1, 2002, National Trails Day was held at Bradley Palmer State Park in Hamilton, Massachusetts organized by the Hamilton Conservation Commission. During this day I was proud to attend the ribbon cutting ceremony for the first accessible recreational trail in Northeastern Massachusetts. It is named "Lizzy's Trail", after a local girl who is disabled. There was much excitement during the ceremony as supporters listened to the Commissioner of the Department of Environmental Management, Peter Weber, Representative Brad Hill, and Senator Bruce Tarr speak of the passion and hard work that went into making this accessible trail a reality. I was honored to present a certificate of appreciation to the Hamilton Conservation Commission on behalf of ILCNSCA for their extraordinary efforts to improve accessible recreation trails for persons with disabilities. I urge you to visit Bradley Palmer State Park in Hamilton, off route 1A, take Asbury Street, and see the Park entrance on your left. Enjoy!
Adults With Attention Deficit Hyperactivity Disorder (ADHD)
By Elaine O'Donnell, Director of Services
I attended a workshop on April 16, 2002 in Shrewsbury, MA and share with you my notes from that workshop. According to Dr. Kevin Murphy Ph.D at the Adult ADHD Clinic at the University of Massachusetts Medical/Memorial Healthcare Center, a continuum of clinical judgment is required to make a formal diagnosis for Adults with Attention Deficit Hyperactivity Disorder (ADHD) because measuring the impairment can be difficult. The definition of a disability is a physical or mental impairment that substantially limits one or more of the major life activities. So what is Attention Deficit Hyperactivity Disorder (ADHD) in adults? It is a developmental disability with a childhood onset that results in a chronic and an all-encompassing pattern of impairment in school, social and/or work domains, and often in daily adaptive functions. There is now clear evidence that ADHD continues into adulthood and that Adult ADHD is a legitimate diagnosis. It is hard to diagnosis because there are normal symptoms, which are also common to many other diagnoses. Some of the typical behavioral manifestations in adults with ADHD are as follows: trouble focusing and concentrating; easily distractible or sidetracked; trouble finishing tasks; themes of intense frustration; poor organization and planning; procrastination; impulsive decision making; frequent impulsive job changes; chronic lateness; and frequently lose/misplace things. The key goals of intervention for adults with ADHD is to instill hope and to empower one to feel potent; to reframe the person's disorder so that they can understand what it is they have to cope with; to help build self esteem; educate; and to learn self-acceptance. In some cases with adults, medications such as certain stimulants can be very helpful. Some of the other treatments that have been beneficial include: job counseling/vocational matching; credit counseling/money management; substance abuse treatment; anger control strategies; relaxation training; breaking large tasks down; frequent feedback/positive reinforcement; and use of technology such as computers, spell check, and email. I have saved my handouts from this workshop and they are available in the ILCNSCA Disability Resource files. If you would like to explore those, please contact me, Elaine, at 978-741-0077 x. 12.
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Impractical and Ideal In the term now ending, the Supreme Court issued three decisions limiting the reach of the ADA. Trying to interpret a law that expects people to be abled and disabled simultaneously, the court plunges into a festival of Talmudic distinctions. Is "working" a "major life activity"? Do we mean working in a "specific job" or working in a "broad range of jobs"? What about "performing manual tasks"? Is that a "major life activity"? Can it be "specific" or does it need to be a "broad range" such as "working"? (The justices' uncertainty about whether working is a major life activity makes you think it must be pleasant to be a Supreme Court Justice.) Court Had Rehnquist Initials Intricately Carved on Docket (The New York Times) ... term for labor and employment law, the court decided three cases under the ADA and continued a trend of employer victories under the12-year-old law....... No. 00-1089, the court ruled unanimously that to qualify as disabled, a person must have substantial limitations on abilities that are "central to daily life,... Supreme Court Term Comes to Close (AP) The Supreme Court, in the term that ended last week, narrowed protections for people with disabilities and raised soul-searching concerns about the death penalty. AT: Premier Programming Solutions' Assistive Software Grant Pro-gram for Primary, Secondary Schools Reaches $6.5 Million "Company's Installed Base Now Largest Worldwide in Assistive Software with 5 Million PCs Using "Accessibility Suite" Packages General Disability: Blind Group Sues U.S. Over Currency The American Council of the Blind, which seeks to improve conditions for the visually impaired, has sued the Treasury Department to force its way into the currency revamping process. Imprisoned by Medicare (Washington Post)."... The homebound rule was intended to deter abuse of the home health benefit by limiting services to those individuals whose illnesses and disabilities are so severe that leaving the home would require "a consider-able and taxing effort." In the 1960s, when this rule was created, it reflected the limits of health care and technology at the time. It was incomprehensible then to think that someone with ALS or any severe and permanent disability could leave the home. ..." www.washingtonpost.com/wp-dyn/articles/ A52363-2002Jun26.html
Justin Dart, true hero, inspiring leader, mentor, Presidential Medal of Freedom recipient, father of the ADA and one of the brightest lights the 600 million people with disabilities around the world have ever had, died this Saturday morning, June 22, 2002. This is a huge loss for the disability community. As an original crafter of the ADA, Justin's unrelenting advocacy has had a huge impact on the planet's physical landscape and an equally positive effect in enhancing the awareness and acceptance of citizens with disabilities. Justin wouldn't want us boo hooing over his death. He would tell us all in no uncertain terms that we need to redouble our efforts and do whatever it takes in our fight for Freedom. From Email to MMMoore from MikeWarshawsky, "Chair"person" WHAT'S NEW?!Consulting Group, 22 Railroad St., #401, Andover MA 01810-3573 978-749-9428 978-474-1033 - fax 978-764-7533 - cell
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Independent Living Center of the North Shore and Cape Ann
ILCNSCA follows the federal standards as an independent living center (ILC). We are unique in the arena of human service agencies as all ILC's are consumer controlled and community based. Persons with disabilities control agency decision-making and operations. Fifty percent or more of the Board of Directors must be persons with disabilities as must also be the Executive Director and any staff responsible for direct services. Directors and staff provide leadership and also serve as role models of successful Independent Living (IL) for others to follow. ILCNSCA provides direct services to empower individuals with the essential skills and self-confidence to achieve their IL goals. It also seeks positive change in the broader community to ensure rights and opportunities for participation in all areas of life and the freedom to pursue dreams.
Programs and Services
ILCNSCA serves the following cities and towns of the North Shore and Cape Ann: Beverly, Danvers, Essex, Gloucester, Hamilton, Ipswich, Lynn, Lynnfield, Manchester, Marblehead, Melrose, Middleton, Nahant, North Reading, Peabody, Reading, Rockport, Rowley, Salem, Saugus, Stoneham, Swampscott, Topsfield, Wakefield and Wenham. In keeping with federal standards for ILCs, the ILCNSCA offers the requisites of Independent Living Skills Training, Peer Counseling, Information and Referral, and Advocacy. Peer Support Groups, Social/Recreation activities, topical Workshops, and Community Access Advocacy Groups are also offered.
Information and Referral (I&R;)
The Center provides information continuously to individuals with disabilities, their families and friends and representatives of human service agencies and cities and towns regarding services throughout the North Shore and Cape Ann Service Area. I&R; keeps people informed about IL possibilities, expands awareness about the mission and activities of the Center, and reinforces the fundamental IL principle of participation in already available services in the mainstream to the fullest extent.
Independent Living Skills Training
IL Skills teach a person with a disability all of the essential skills necessary to function in today's complex society. Topics covered include household maintenance, meal preparation, nutrition, health maintenance, emergency medical procedure, housing search, landlord/tenant relations, financial management, transportation, civil rights, individual advocacy, and Personal Assistance management for those who will need assistance to meet daily needs which the nature of their disabilities prohibits them from doing. Working with a Peer Guide, a Consumer will determine his/her own goals for independent living, which will in turn determine the skill areas for training. The Consumer will then master these skills through a combination of visits with the Peer Guide, written practice, homework and actual hands-on experience at the market, on the bus, in a social setting or at a relevant community setting.
For success in IL, it is necessary to have confidence, to understand how to cope with being "out there" in society and being constantly viewed as "different." Family issues, sexual identification, as a man or woman with a disability, and assertiveness in social and business situations are common areas of concern. The same Peer Guide providing IL Skills will also assist the consumer on these personal issues. Learning to cope with challenges is equally important for success in Independent Living as any practical skills training.
Advocacy and Education
The Center brings together its Members and acts in collaboration with other organizations such as the Massachusetts Statewide Independent Living Council, Independent Living Centers, and social justice organizations to eliminate barriers to full social participation by individuals with disabilities in society. Advocacy may take any one of several forms including information in the Center's newsletter, technical assistance on laws and regulations to other organizations to assist them to take informed, appropriate individual or group action to improve access to their activities and services, or education of elected and appointed local and state officials on rights and benefits of participation by persons with disabilities.
VOLUME X ISSUE 4 SUMMER 2002
PUBLISHER: Mary Margaret Moore. CONTRIBUTORS: Shawn McDuff, Elaine O’Donnell, Jeanne Lyons, Zoyla Galice, Kerry-Lynne Jacobs Amy Baudistel. The INDEPENDENT TIMES is a quarterly newsletter of the Independent Living Center of the North Shore and Cape Ann, Inc. (ILCNSCA), 27 Congress Street, Suite 107, Salem, MA 01970. Telephone: (978) 741-0077 V/TTY, Toll Free Telephone: (888) 751-0077 V/TTY, Fax: (978) 741-1133. EMAIL address: Information@ilcnsca.org. We also have a Cape Ann branch office at Addision-Gilbert Hospital, Room 4, 298 Washington Street, Gloucester, MA 01930. Telephone: (978)283-4000, ext. 366 V/TTY. INDEPENDENT TIMES welcomes the submission of articles, press releases, personal success stories that relate to independent living. Advertisements are also welcome. The editorial staff reserves the right to edit or reject material submitted to accommodate space or other concerns. Unsolicited material not accompanied by a self addressed stamped envelope will not be returned. ILCNSCA’s philosophy is based upon the belief that people with disabilities can lead more independent lives when given the opportunity. We also believe that such an opportunity is a human right. This newsletter is partially funded by a grant from the New England ADA & Accessible IT Technical Assistance Center.