Volume X, Issue 3, Spring 2002
From the Executive Director Mary Margaret Moore
We are facing the same economic uncertainty as are all state funded programs in Massachusetts. We are anticipating state funding cuts beginning July 1.
In light of this our Board has taken on two fundraising events. One is the In-Step for Independent Living Walk-a-thon. See our insert on this event and please participate by being a sponsor or assisting on that day.
The other fundraiser is with the support of Crosby's Market. In March we had three days in which all purchases made at Crosby's markets accompanied by the Crosby's Community Commitment Voucher will result in Crosby's giving ILCNSCA 5%. There are six other days, three in May and three in June, for you and other ILCNSCA supporters to participate in this fundraiser. In July, Crosby's will send to us the funds raised. We thank all of you that shopped in March and hope you will remember us in May and June. See dates in Calendar section.
We believe the economic instability is temporary. With your help we, ILCNSCA, will weather this stormy time and continue to better meet the needs of persons with disabilities who choose to live independently on the North Shore and Cape Ann.
ILCNSCA Legislative Breakfast
Our 15th Annual Legislative Breakfast will be held on Friday, April 12, 2002 at the Hawthorne Hotel, 18 Washington Square West in Salem from 8:30 - 11:00 a.m. The theme this year is In the current climate, how are you, our legislators, safeguarding and expanding services and funds for Persons with Disabilities, especially in light of the Olmstead decision? (See article, page 2). This annual event enables you to meet and speak directly with your invited local legislator, giving you an opportunity to convey your priorities for state funding in fiscal year 2003.
Rep. Ruane and Sen. Berry are the co-hosts. US Rep. Tierney will also be speaking. ILCNSCA Board President Sheila Casey, Esq., Bill Henning, CORD Executive Director, Charlie Carr, NILP Executive Director and Maria Cervone, of Lynn will also be speaking along with ILCNSCA Executive Director. Presentations of annual awards to disability advocates and independent living role models will occur.
Come as close as possible to 8:30 AM for socializing with your state legislator. All have been invited to this exciting event during this year of economic constraints.
Please RSVP to Shawn McDuff at (978) 741-0077 v/tty. A donation of $2 for ILCNSCA members, consumers and persons with disabilities; and $5 for professionals, service providers and other customers is suggested to defray the cost. We hope to see you. Together we can change the world!
What is OLMSTEAD and Why Should I Be Concerned?
On June 22, 1999, the Supreme Court decided Olmstead v. L.C., ruling that, in appropriate circumstances, the ADA requires the placement of persons with disabilities in a community-integrated setting whenever possible. The Court concluded that "unjustified isolation," e.g., institutionalization when a doctor deems the community treatment equally beneficial, "is properly regarded as discrimination based on disability."
Olmstead has yet to be fully implemented. President Bush believes that community-based care is critically important to promoting maximum independence and to integrating individuals with disabilities into community life. Each state has been federally mandated by President Bush to develop a plan for implementation of the Olmstead decision.
The Executive Order directs key federal agencies to assist states as they work to fully comply with Olmstead decision and the ADA. It directs HHS to coordinate an effort by all federal agencies to evaluate their own policies, programs and regulations to ensure that community-based services for people with disabilities are available. Finally, it directs the Attorney General and the Secretary of Health and Human Services to fully enforce Title II of the ADA, including alternative dispute resolution mechanisms to help resolve complaints filed by those who allege they are victims of unjustified institutionalization. Massachusetts has an Olmstead Plan Committee. ILCNSCA attended two public hearings before the Olmstead Plan Committee and presented testimony stating that independent living centers and other community services such as health, housing, employment, personal care assistance, transportation needs to be increased and made more accessible in Massachusetts. The Olmstead Plan Committee report will be available shortly. Watch for its release or contact Shawn McDuff at ILCNSCA for more information.
Weekly Call-In Time For Information On Salem Housing
Salem residents who have questions regarding housing are urged to call-in to the Independent Living Center of the North Shore and Cape Ann, Inc (ILCNSCA). This call-in period will be offered Wednesday mornings from 10:00 AM to 12:00 PM. On those mornings, ILCNSCA peer advocates will be available to answer questions and provide information to persons who live in Salem on housing issues. Call ILCNSCA at 978-741-0077 V/TTY. ILCNSCA's Weekly Call-in is funded in part by the City of Salem Department of Planning & Community Development, U.S. Department of Housing & Urban Development.
Su Llamada senanal de Informacion en Asuntos de Vivienda para el Pueblo de Salem
Los residents de Salem que tengan alguna pregunta relacionada con vivienda, se les exhorta a que llamen rapidamente al Centro de Vida Independiente de N.S.C.A. (ILCNSCA). Esta llamada se ofrecera los Miercoles en la manana de 10 a 12. En esa dos horas de la manana los consejeros de ILCNSCA estaran disponibles para responder preguntas y ofrecer informacion a personas con limitaciones fisicas o mentales que vivan en el pueblo de Salem, en asuntos de vivienda. Llame al 978-741-0077. Esta actividad es patrocinada en parte por el Departamento de Planificacion y Desarrollo de la Comunidad, y por el Departamento de Vivienda y Desarrollo Urbano de E.U.
Access Art by Art Daignault
Community Access Monitor Training
On March 12 & 13, 2002, the Mass. Office on Disability held a two-day Community Access Monitoring (CAM) Training at the First Baptist Church in Beverly. This training was co-sponsored by the Independent Living Center of the North Shore & Cape Ann, Inc. (ILCNSCA), the Beverly Commission on Disabilities and the New England Americans with Disability Act & Accessible Information Technology Center.
The purpose of this training was to increase the awareness and knowledge of individuals regarding the state and federal access regulations and to learn methods of how to advocate for accessibility. By attending this initial training all participants have the opportunity to further develop their access monitoring skills through working with the Mass. Office on Disability statewide.
Some of the topics discussed were the history of the Americans with Disability Act (ADA) and how to survey a facility for access using the federal Americans with Disabilities Accessibility Guidelines (ADAAG) as well as 521 CMR the accessibility regulations of the Commonwealth of Massachusetts. The CAM training participants surveyed the First Baptist Church for practice purposes on the second day of the training.
Approximately thirty to forty people attended this training. The group was made up of Consumers with disabilities; ADA Coordinators, Building Inspectors and Planning Directors of the different Cities/Towns in the ILCNSCA service area. Businesses and contractors were not represented at the training.
The ILCNSCA recruited volunteers for their Community Access & Advocacy Team and the Restaurant Accessibility Survey Project. These groups work with ILCNSCA to perform site surveys and advocate for increased accessibility in the public and private sectors as volunteers of the ILCNSCA. If you would like to become a volunteer for either or both of the above groups or have questions, you may contact Art Daignault at (978) 741-0077 ext. 16 (v/tty).
Talking ATM Machines Update
In our last newsletter, Volume X Issue 2, we informed our readers about a plan announced by Fleet Bank and the Disability Law Center to make Fleet "banking services more accessible to individuals who are blind or visually impaired. With that in mind, the Independent Living Center of the North Shore & Cape Ann, Inc. (ILCNSCA) has completed a survey of different banks in our service area as to whether they have "voice guidance" or talking ATM machines. Of the eighteen different banks contacted, only two banks have or are in the process of installing talking ATM machines. They are Fleet Bank and the Beverly National Bank.
At the present time, not all of the Fleet Banks have these talking ATM machines. To find the nearest location of a talking ATM machine with the address of the branch and with driving instructions including a map go to Fleet's website at www.fleet.com or by calling Customer Service at 1-800-841-4000. Headsets are available free of charge at the Fleet Branches that have talking ATMs or by calling the Fleet Telephone Banking at the above 800 phone number.
The Beverly National Bank is in the testing stages of the talking ATM machines. But, according to Michael Lawlor, Vice-President of Compliance and Security, by the start of this summer, they are hoping to have talking ATM machines installed at their newest branches. These branch locations are at the Out-Patient Department of Beverly Hospital on Herrick Street in Beverly and the Burger King Restaurant rest stop on Route 128, just after exit 19 (Brimbal Avenue) on the north bound side in Beverly.
The ILCNSCA applauds these two Banks for their efforts in helping people with disabilities live independently as possible in their communities. We suggest that you let them know directly your feelings and urge you to let other banks know we are watching their progress.
ILCNSCA is interested in hearing from you regarding any access issue you are encountering. We are committed to working with individuals, businesses and municipalities in the 20 cities/towns in our service area to increase accessibility for everyone. If you or someone you know has an accessibility issue, Access Art, alias Art Daignault, would like to hear from you. Art will assist you to explore your issue, find out if there is a possible violation, to file a complaint in necessary, how to advocate and educate others on your access rights, e.g., landlords and business owners, and give you support to make things more accessible for yourself. Contact Art Daignault , Access Specialist, at 978-741-0077 v/tty or email: firstname.lastname@example.org, and write "Access Issue" in subject line.
People with Disabilities & Airline Security By Access Art
On October 29, 2001, the Office of the Assistant General Counsel for Aviation Enforcement and Proceedings and its Aviation Consumer Protection Division provided answers to frequently asked questions since September 11th concerning the air travels of people with disabilities. Because of the above events, the Federal Aviation Administration issued directives to strengthen security measures at airline checkpoints and passenger screening locations.
In a forward, entitled "Information on People with Disabilities & Airline Security, some of the highlights of importance for people with disabilities includes information regarding service animals, oxygen canisters, medical equipment, storing wheelchairs/scooters and providing information in alternative formats. A copy of this article can be obtained from Marcie Roth, Director of Advocacy and Public Policy. Her address is National Council on Independent Living, 1916 Wilson Blvd., Suite 209, Arlington, VA 22201; her phone number is (703) 525-3406 (v), (703) 525-4153 (tty) and her e-mail address is email@example.com (e-mail).
If you feel that you have been discriminated against by an airline based on accessibility of airline service or race, ethnicity, national origin, religion, sex or sexual orientation, you have the right to file a complaint against the airline. The ILCNSCA is willing to assist you in filing a complaint and has the necessary complaint forms. You can reach the Center by calling (978) 741-0077 (v/tty) Monday through Friday, 9:00 AM to 5:00 PM or by e-mail to: adaignault@ILCNSCA.org.
Questions to Ponder
With the state budget deficit growing how come the Big Dig costs keep going up? Will cuts in the state funding for contractors also apply to that project? If not, why not? When human services program costs go up usually the response from state government is to cut back on services provided? Will the Big Dig route be shortened? Will it be less deep? What do you think? Let your elected officials know your thoughts...
New England ADA & Accessible IT Center To Expand Scope Of Work Building Training and Technical Assistance Capacity to Promote Accessible Educational Information Technology in the Region
Adaptive Environments has been awarded a new five-year grant from the National Institute of Rehabilitation Research at the U.S. Department of Education for the New England ADA & Accessible Information Technology (IT) Center, formerly the New England ADA Technical Assistance Center. The grant allows the Center to continue its work to support voluntary compliance with the ADA and introduces an additional scope of work to promote universally designed IT in educational settings. The Center will target public and private K-12 programs and higher education including colleges and universities and adult education programs. In addition to its network of state affiliates, new IT partners or consultants in each state will assist to provide coordination and expertise to meet this expanded agenda.
The NE ADA & Accessible IT Center welcomes three new staff members in the new grant cycle. Dr. Oce Harrison will become the Center's Project Director. Oce has twenty-five years of experience in disability rights and other social justice work.
Her doctorate from Boston University is in Human Development and Education. She is a mediator and is a part-time professor at Lesley University and Bridgewater State College. David Clark, one of the nation's most skilled experts in accessible IT, serves as the Center's technical trainer and consultant. Candace Low, executive director of Independence Unlimited, a Hartford-based Independent Living Center, will provide training on telecommunications.
The IT initiative is urgently needed and timely for several reasons:
The rapid proliferation of IT risks creating a new barrier-full world for people with disabilities. Recent reports indicate that there remains an alarming disparity between the prevalence of IT in all aspects of the society and the access to it by Americans with disabilities. Given the fact that technology opens new worlds of opportunity and that we have available now options for IT that works for a very wide spectrum of users, it is a situation that can and must be reversed.
Technology and work become annually more entwined. Services, including 'business services' such as advertising, management consulting, software and insurance, and 'consumer services' such as entertainment, education and health care, account for 46% of all New England jobs. (New England On-Line, Business and Economy) If you cannot use IT, your chances of employment and advancement become bleaker each year.
We have come far enough down the 'information superhighway' for everyone to have experienced the frustration of the poor user interface so common in our IT. Almost anyone who uses IT knows the frustration of pervasively poor product design (e.g., epidemic rates of repetitive stress injury), a level of complexity in instruction manuals that almost guarantees that only a fraction of the technology's capacity will be used, poor performance if the circumstances of use are not optimal - especially obvious in the increasing appetite for mobile computing. It is possible to choose information technology that is flexible enough to meet the needs of a very wide spectrum of users and to work easily for people with disabilities that will also need assistive technology.
The project intends to make the information about accessible IT Readily available to students, families, teachers, and the general public as well as to decision-makers and technology experts. A public awareness campaign, technical assistance, and diverse training opportunities are intended to heighten attention and build expertise in universally designed IT in education throughout New England.
Adaptive Environments is a Boston-based nonprofit founded in 1978 dedicated to making places and things work seamlessly and well for everyone, across variation in ability or age. Adaptive Environments offers educational programs, technical assistance, training, consultation, publications, and design advocacy. For more information visit our website at http://www.adaptiveenvironments.org.
ADVERTISE in Independent Times!
Contact Smcduff@ilcnsca.org for information.
DONATIONS To ILCNSCA, Winter 2002 .
DONOR COMPANY and/or TOWN DONATION
- Edward B. Stevens, North Andover $50
- Ms. Maria Quezada, Salem $25
- Robert C. Downs, Bedford $100
- Russell M. Blair, Norfolk $100
- Ms. Eunice Fox, Peabody Ultra Tec Minicom IV TTY/ Telecaption 4000
- Mrs. Charlotte Garber Marblehead, Computer/Printer
- Fred Golder, Esq., Lynnfield $100
- You to can send in a donation to ILCNSCA. Make checks payable to: ILCNSCA. We thank all of our donors for their continued support of ILCNSCA.
Free Equipment For Disabled Individual
1) Puff and sip system to operate TV and/or VCR: This is a system of blowing into a tube (puffing) or inhaling from the tube (sipping) in order to operate a program that would turn the TV/VCR on and off or change the channel on the TV/VCR.
2) Puff and sip system to operate the telephone and lights inside/outside a home that works with an X10 unit: This is a system of blowing into a tube (puffing) or inhaling from the tube (sipping) in order to operate a program that would turn lights on/off and answer the phone.This X10 unit to operate the device can be purchased at Radio Shack.
3) 2 Electric wheelchairs: A small electric wheelchair with a device to stabilize a person's chin, but needs to have a battery installed in the wheelchair. A newer electric wheelchair with a device to stabilize a person's chin.
4) Bed inflator movement for sleeping device that fits a single bed size area with timer:Device to assist a person in changing their position in bed. Device can fold-up and placed in a suitcase for traveling purposes.
For more information, please call Dan Muessel at (978) 774-8309.
Other Available Free Equipment
Eunice Fox of Peabody kindly gave to the Center the following equipment:
Ultra Tec Minicom IV TTY
If either of the above would be helpful to you in living independently please call Kathy at 978-741-0077 v/tty and arrange to come to pick it up.
UPDATE on Insurance Parity for Prosthetic Device Bill
House, no. 4576 presented by Rep. J. Michael Ruane, and petitioned by Rep. Ruane, Rep. John P.Slattery, and Sen. Frederick E. Berry along with Senate, no. 731 presented by Sen. Berry, and petitioned by Sen. Berry, Sen. Therese Murray, and Sen. David P. Magnani are in support of private insurance coverage for Prosthetic Devices to be comparable to federal insurance coverage has been reportedly favorably by committee. It has been with the Senate Ways and Means Committee awaiting final action. Please contact your legislators on this bill.
The findings of the second group of surveys of restaurants in the ILCNSCA service area has been completed as part of the Restaurant Accessibility Survey Project (RASP) funded by the North Shore Self-Help Group. Restaurants were surveyed and are rated for accessibility in the following categories: external access, entry/exit, internal access, restrooms, service, and alternate communication means. Restaurant survey ratings range from a score 1 to 6 with 6 being the highest.
Hilltop Steak Hous
855 Broadway (Route 1 South), Saugus, MA
Offered handicap parking that was close to the entrance, but with no van accessible space or access aisles. The front entrance is ramped for easy passage for someone in a wheelchair. The restrooms were fully accessible. There was no issue with seating or maneuverability in the dining area. Overall, the ILCNSCA would recommend this restaurant, but keep in mind, there were no menus in Braille, large print or cassette. Rating: 5
55 Summer Street, Lynnfield, MA
Had handicap parking, but no van accessible space. There was no ramp for people in wheelchairs. The thresholds would be difficult to roll over. Restrooms were not accessible. The majority of the tables were non-fixed for wheelchairs with sufficient knee clearance. There were no menus in Braille, large print or cassette. The ILCNSCA would advise caution in choosing this restaurant for dining. Rating: 2
Jimmy's Steer House
114 Broadway (Route 1 North), Saugus, MA
Had very limited handicap parking. The entrance was not a problem for a person in a wheelchair. The dining area was maneuverable for wheelchair with non-fixed tables that had sufficient knee space. Restrooms were fully accessible. Restaurant personnel were respectful and met a person's disability related needs. The ILCNSCA would recommend this restaurant, but be aware of the handicap parking and no menus in Braille, large print or cassette. Rating: 4
Next RASP training/meeting is May 7, 2-4:00 PM at ILCNSCA office. To be a part this advocacy group, contact Shawn McDuff via phone, (978) 741-0077 x 12 (v/tty) or e-mail at smcduff@ILCNSCA.org, with RASP in the subject line.
Jamie Returns to ILCNSCA
My name is Jamie Flavin and I have returned to work at the Independent Living Center of the North Shore and Cape Ann, Inc. as the new Peer Advocate. I work three days a week in our Cape Ann Branch Office and two days a week in our Main Office in Salem. Under my new responsibilities as a Peer Advocate, I am also the Transportation Specialist. Some of my duties as Transportation Specialist include attending transportation system improvement meetings and organizing transportation advocacy and complaint process. I am excited to be back working here at the Center and look forward to working again with all of you.
MASSTRAN SPECIALIZED TRANSPORTATION
for All Of Your Corporate, Luxury, Airport And Wheelchair Travel Needs.
Call 1-800-768-1110 or 1-781-581-8382
Exciting Part-Time Job Opportunity
Tufts University's Medical School has a new part-time job opportunity for people with disabilities. It is called the "Standardized Patient" Program. They are looking for 4-6 people interested in working with the faculty of the medical school in implementing a new way to educate medical students to meet the needs of the disabled. You would learn how to appropriately and effectively run interviews with individuals who have disabilities, presenting yourself as a patient with a disability that has other health issues.
- Male or female between 30 and 60, with a disability.
- Be willing to train in role-play.
- Be willing to be trained in giving constructive feedback to the student.
- Be interested in educating people about disabilities.
- Willing to commit one afternoon per month over the next year.
Flexible "Case Training" hours paid at $20/hour. Actual "Case Portrayals" with medical students paid at $20/hour. Portrayals will usually occur monthly between noon and 6:00 PM in downtown Boston (free parking will be provided). For more information, please contact Will MacDonald @ 603-483-9851 (firstname.lastname@example.org) or Linda Long @ 617-232-4757 (email@example.com).
Independent Living Center of the North Shore and Cape Ann
ILCNSCA follows the federal standards as an independent living center (ILC). We are unique in the arena of human service agencies as all ILC's are consumer controlled and community based. Persons with disabilities control agency decision-making and operations. Fifty percent or more of the Board of Directors must be persons with disabilities as must also be the Executive Director and any staff responsible for direct services. Directors and staff provide leadership and also serve as role models of successful Independent Living (IL) for others to follow. ILCNSCA provides direct services to empower individuals with the essential skills and self-confidence to achieve their IL goals. It also seeks positive change in the broader community to ensure rights and opportunities for participation in all areas of life and the freedom to pursue dreams.
Programs and Services
ILCNSCA serves the following cities and towns of the North Shore and Cape Ann: Beverly, Danvers, Essex, Gloucester, Hamilton, Ipswich, Lynn, Lynnfield, Manchester, Marblehead, Melrose, Middleton, Nahant, North Reading, Peabody, Reading, Rockport, Rowley, Salem, Saugus, Stoneham, Swampscott, Topsfield, Wakefield and Wenham. In keeping with federal standards for ILCs, the ILCNSCA offers the requisites of Independent Living Skills Training, Peer Counseling, Information and Referral, and Advocacy. Peer Support Groups, Social/Recreation activities, topical Workshops, and Community Access Advocacy Groups are also offered.
Information and Referral (I&R;)
The Center provides information continuously to individuals with disabilities, their families and friends and representatives of human service agencies and cities and towns regarding services throughout the North Shore and Cape Ann Service Area. I&R; keeps people informed about IL possibilities, expands awareness about the mission and activities of the Center, and reinforces the fundamental IL principle of participation in already available services in the mainstream to the fullest extent.
Independent Living Skills Training
IL Skills teach a person with a disability all of the essential skills necessary to function in today's complex society. Topics covered include household maintenance, meal preparation, nutrition, health maintenance, emergency medical procedure, housing search, landlord/tenant relations, financial management, transportation, civil rights, individual advocacy, and Personal Assistance management for those who will need assistance to meet daily needs which the nature of their disabilities prohibits them from doing. Working with a Peer Guide, a Consumer will determine his/her own goals for independent living, which will in turn determine the skill areas for training. The Consumer will then master these skills through a combination of visits with the Peer Guide, written practice, homework and actual hands-on experience at the market, on the bus, in a social setting or at a relevant community setting.
For success in IL, it is necessary to have confidence, to understand how to cope with being "out there" in society and being constantly viewed as "different." Family issues, sexual identification, as a man or woman with a disability, and assertiveness in social and business situations are common areas of concern. The same Peer Guide providing IL Skills will also assist the consumer on these personal issues. Learning to cope with challenges is equally important for success in Independent Living as any practical skills training.
Advocacy and Education
The Center brings together its Members and acts in collaboration with other organizations such as the Massachusetts Statewide Independent Living Council, Independent Living Centers, and social justice organizations to eliminate barriers to full social participation by individuals with disabilities in society. Advocacy may take any one of several forms including information in the Center's newsletter, technical assistance on laws and regulations to other organizations to assist them to take informed, appropriate individual or group action to improve access to their activities and services, or education of elected and appointed local and state officials on rights and benefits of participation by persons with disabilities.
INDEPENDENT TIMES Volume X, Issue 3, Spring 2002
Publisher: Mary Margaret Moore Contributors: Shawn McDuff, Art Daignault, Jeanne Lyons, Elaine O'Donnell, Zoyla Galice, Jamie Flavin. The INDEPENDENT TIMES, is a Quarterly newsletter of the Independent Living Center of the North Shore and Cape Ann Inc. (ILCNSCA), 27 Congress St., Suite 107, Salem, MA 01970. Tel: (978) 741-0077 V/TTY, Toll Free Tel: (888) 751-0077 V/TTY, Fax: (978) 741-1133. Email: Information@ilcnsca.org. We also have a Cape Ann Branch at Addison-Gilbert Hospital, Room 4, 298 Washington Street in Gloucester, Monday and Friday, 9 AM - 5 PM. Tel: (978) 283-4000 ext. 366 V/TTY. INDEPENDENT TIMES is published quarterly and welcomes the submission of articles, press releases, original cartoons, and advertisements. The editorial staff reserves the right to edit or reject material submitted to accommodate space or other concerns. Unsolicited material not accompanied by a self-addressed stamped envelope will not be returned. ILCNSCA's philosophy is based on the belief that people with disabilities can lead more independent lives when given the opportunity. We also believe that such an opportunity is a human right. This newsletter is partially funded by a grant from New England ADA Technical Assistance Center. This publication is also available at our BOBBY approved web site: www.ilcnsca.org .